Advocating for you

The National Psoriasis Foundation advocates for policies that improve the lives of people with psoriasis and psoriatic arthritis.

Harnessing the efforts of thousands of advocates, NPF aims to:

  • Improve coverage for people with psoriatic disease by making health care fair and affordable.
  • Provide access to the many treatments for psoriasis and psoriatic arthritis.
  • Increase federal funding for research to advance public health interventions, find better treatments and ultimately a cure.

Founded in 1966 from a tiny classified ad in a Portland, Oregon, newspaper, NPF has grown to be the largest national nonprofit organization representing the psoriatic disease community.

What began more than 50 years ago as a coalition of volunteers led by founder Beverly Foster Halperin is now a nationwide leader in the effort to improve health outcomes and find a cure for psoriasis and psoriatic arthritis.

Our advocacy victories

26 states passed step therapy protections

4.4 million people with psoriatic disease potentially receiving better health care

 65+ state and federal comments submitted on health care policy proposals in 2019

Our 2020 priorities

We drive policy change to improve patient health outcomes for those living with psoriatic disease.

We advocate for policies that promote adequate, affordable, and accessible health care. Our work centers on ensuring people with psoriatic disease can get the treatment their doctor recommends – without breaking the budget. 

We’re engaged in ongoing activities around advancing public health research for psoriasis and psoriatic arthritis. NPF has also invested more than $19 million in psoriatic disease research since 1987.

We support reigning in and limiting the maximum co-insurance, out-of-pocket expenses, and deductibles for individuals to enable them to have real access to affordable medications.

We’re leading a nationwide campaign to pass legislation that ensures patients can get the medication they need, when they need it.

We advocate for key patient protections in insurance markets, like essential health benefits, coverage for pre-existing conditions, and bans on annual and lifetime limits.

We work to protect and improve access to care through programs that provide health care to vulnerable individuals and their caregivers. 

STEP THERAPY

We believe people should have access to the medication they need, when they need it.

With step therapy, or fail first, policies, insurers require patients to fail on one or more medications before approving the therapy originally prescribed by their provider. These requirements can lead to delays in care, increased disease activity and irreversible disease progression. According to a 2019 advocacy survey, 41% of people with psoriatic disease reported experiencing step therapy.

How we set our priorities

NPF’s priorities are defined by an Access to Care statement developed and approved by our Medical Board. NPF advocacy works to expand access to care for the psoriatic disease community. Specifically, the NPF:

  • Supports patient and provider friendly guardrails on step therapy, or fail first policies, and the tiering of biologics and novel therapies to ensure patients have timely access to the most medically appropriate treatment.
  • Supports reigning in and limiting the maximum co-insurance and out of pocket expenses for patients to enable patients to have real access to affordable medications.
  • Opposes unnecessary and restrictive bureaucratic barriers to federal and state programs that provide health care to vulnerable individuals and their caregivers.
  • Opposes policies that intentionally discriminate based on psoriatic disease status or individual characteristics.

Read our 2019 annual report to learn more about our outcomes and initiatives.