Telling your story
Meetings with your representative and their staff on the Hill or in the district office are often very short, leaving you only about 15 minutes to introduce yourself, tell your story, and state your ask.
What to expect
Before the meeting:
- Practice telling your story. As an expert in the area of psoriasis and psoriatic disease, you have valuable information to share! It’s important to be succinct but heartfelt and genuine while relating it to the policy asks.
- Gather your materials. Business cards make great leave-behinds for staffers. Infographics help them understand the impact and significance of psoriatic disease.
- Please don’t feel the need to cover up your symptoms if you are currently flaring.
During the meeting:
- Introduce yourself, even if you have met before;
- Provide a personal story or real-life illustration;
- Know your ask and stay on message;
- Be honest, brief, specific, and keep it simple. If you can’t answer a question, tell them you will get back to them;
- Be polite and pleasant, regardless of the situation;
- Provide information to the Senator or House member toward the end of the meeting and explain what is in the packet;
- Enjoy yourself, and know that you are making a difference for the millions of Americans with psoriatic disease!
- Thank your legislator or staffer for meeting with you.
After the meeting:
- Write a thank you and provide specifics from the meeting. Remember to reiterate your ask.
- Let us know how it went!
MEET OUR ADVOCATES
People like you drive real policy changes. Meet others who have spoken up on behalf of the millions with psoriatic disease.
Documents and Tipsheets
Understanding the facts
Step therapy, high out-of-pocket costs and other barriers impact people with psoriatic disease. Results from NPF surveys show just how far-reaching these barriers are and the role they play in access to care for our community. Get the facts and help advocate for change.
How NPF Addresses Insurance Barriers
This webcast will discuss the NPF’s state and federal advocacy and policy efforts to address the insurance barriers facing people living with psoriatic disease.
Medicare Access Challenges
In 2018, the NPF co-hosted a congressional briefing with the American College of Rheumatology on Medicare Access Challenges in the Chronic Disease Community.
More Video Resources:
Public meeting on patient-focused drug development for psoriasis (March 17, 2016)
Monthly action emails to help you make an impact.
- Take your advocacy to the next level (September 26, 2019)
- Now is the time to share your step therapy story (August 22, 2019)
- Special Advocacy Action Network call (July 25, 2019)
- Step therapy reform was signed into law in Georgia, Oklahoma, and Washington (May 30, 2019)